What are some tips to manage and understand NASH
Trying to find my way through being recently diagnosed with NASH and sorting through all of the information including name changes.
I just received the results of my fibroscan yesterday afternoon. My liver has scarring, but no cirrhosis yet. Apparently I qualify for medication, now to wait until my insurance decides if it’s covered.
Good news is I’m down 31 lbs. so I’ll stick to my diet even though my husband doesn’t understand why, and I’m tired of explaining it to him. My coworkers and students understand it better than him. But I need to do what I need to do for myself.being down 31 pounds is a big accomplishment that I know required a lot of hard work and discipline! I hope things work out with your insurance company. Keep up the amazing work, and doing what’s best for your health💙. Our community is here to support you anyway we can. Best wishes, Julie (team member) thank you Julia! It’s been hard working staying away from foods that I used to eat. I’m going to do my best not to backslide over the holidays. It was pretty easy dealing with Thanksgiving, now I’m Christmas and New Year’s!
Julie, I have a lot of pain and nausea.
I am sorry you are experiencing pain and nausea. Thank you for sharing your experience as it helps those who have similar experiences feel understood. I also experienced pain and nausea, and it was so difficult for me to eat much. I am sure you can relate. I love this community as it brings us together and like someone understands and gets us. Together WE are STRONG
Kimberly Nash
Contributor/Moderatorpain and nausea can really be so difficult to manage. Have you found anything helpful to treat it? Thinking of you, Julie (team member)
Manage your protein intake.
Great tip! Finding ways to up our protein intake can be really beneficial. Do you have any go-to recipes to get your protein? -Alexa (team member)
Julie, thank you for reaching out to me. It's been rather confusing trying to navigate through this, I’m in the early stages of being diagnosis, which has taken months of testing from multiple doctors.
I recently found a virtual class at OSUWMC only to find out I needed a referral, unfortunately I wasn't told what specialist the referral needed to come from. After multiple phone calls and MyChart messages it was figured out. Now I have a referral for a Hemotologist to obtain the referral for the class which covers nutrition and exercises, and hopefully more information on this disease.
Was told by my PCP, who is new to me, to go on the Mediterranean diet, loose weight, and exercise 150 minutes a week. Slowly trying to switch to the new diet. PCP thinks I'm in the early stages of fatty liver disease.
Most days I feel like a medical mess and my body is revolting against me. Hypertension, Obesity, no diabetes, high iron levels(which started the testing, only to discover fatty liver instead of what they thought it was), Osteoarthritis everywhere, two TKRs, surgery in both wrists, cysts on various parts of my body along with Basel Cell carcinoma 2x, IBS, multiple tears, burcytis, tendonitis all in my right shoulder, stenosis in right side of my neck, neropothy right foot with degenerative bone loss being replace with calcium growth, right Achilles tendon repair, and more PT than I thought ever possible. That's just the recent 5 years of issues. Now fatty liver. Waiting for the next shoe to drop.
Now to find out as much as I possibly can and try to remove some of the medications and figure out what to take that is better for my liver. Staying positive through everything as best as possible.It sounds like you've really been through a lot trying to figure out what's going on with your body. I'm sure many of us can relate to the feeling that our bodies are working against us. It can be extremely overwhelming to navigate! It's clear to me that you've done a great job of advocating for yourself and learning as much as you can to help take care of your body. It can be easy to shut down, but your positivity will really make a difference! How is your support system at the moment? Do you have a community around you that you can turn to when things become too much to handle on your own? Please know we're here for you every step of the way. And keep me posted on how it goes with the hematologist, I hope you're able to get the referral you need! -Alexa (team member) I have alot of those same issues.
