What are some tips to manage and understand NASH
Trying to find my way through being recently diagnosed with NASH and sorting through all of the information including name changes.
Manage your protein intake.
Great tip! Finding ways to up our protein intake can be really beneficial. Do you have any go-to recipes to get your protein? -Alexa (team member)
Julie, thank you for reaching out to me. It's been rather confusing trying to navigate through this, I’m in the early stages of being diagnosis, which has taken months of testing from multiple doctors.
I recently found a virtual class at OSUWMC only to find out I needed a referral, unfortunately I wasn't told what specialist the referral needed to come from. After multiple phone calls and MyChart messages it was figured out. Now I have a referral for a Hemotologist to obtain the referral for the class which covers nutrition and exercises, and hopefully more information on this disease.
Was told by my PCP, who is new to me, to go on the Mediterranean diet, loose weight, and exercise 150 minutes a week. Slowly trying to switch to the new diet. PCP thinks I'm in the early stages of fatty liver disease.
Most days I feel like a medical mess and my body is revolting against me. Hypertension, Obesity, no diabetes, high iron levels(which started the testing, only to discover fatty liver instead of what they thought it was), Osteoarthritis everywhere, two TKRs, surgery in both wrists, cysts on various parts of my body along with Basel Cell carcinoma 2x, IBS, multiple tears, burcytis, tendonitis all in my right shoulder, stenosis in right side of my neck, neropothy right foot with degenerative bone loss being replace with calcium growth, right Achilles tendon repair, and more PT than I thought ever possible. That's just the recent 5 years of issues. Now fatty liver. Waiting for the next shoe to drop.
Now to find out as much as I possibly can and try to remove some of the medications and figure out what to take that is better for my liver. Staying positive through everything as best as possible.It sounds like you've really been through a lot trying to figure out what's going on with your body. I'm sure many of us can relate to the feeling that our bodies are working against us. It can be extremely overwhelming to navigate! It's clear to me that you've done a great job of advocating for yourself and learning as much as you can to help take care of your body. It can be easy to shut down, but your positivity will really make a difference! How is your support system at the moment? Do you have a community around you that you can turn to when things become too much to handle on your own? Please know we're here for you every step of the way. And keep me posted on how it goes with the hematologist, I hope you're able to get the referral you need! -Alexa (team member)
a new diagnosis can feel overwhelming, our community understands💚. I’m glad you found our site and I hope you’ve found the information helpful. In case you haven’t come across it yet, I wanted to share an article that I hope will resonate with you https://nashdisease.net/living/diagnosis-process. Please do not hesitate to reach out with any questions or for support. We’re here to help anyway we can. All my best, Julie (team member)
