What was your experience being diagnosed with NASH?
For many living with NASH disease, the road to a diagnosis can be long, frustrating, and full of questions.
How did you feel after getting diagnosed with NASH? Did you know what NASH was prior to being diagnosed? We'd love to hear more about your experience!
Thanks so much for this. Never had anyone say anything about pain killers not being good for my liver. In hospital at present as I have ballooned with fluid retention, so when I see the consultant tomorrow I will ask him about the meds.
Did not know I had liver issues. Applied 30 years ago for life insurance and the high enzymes were indicated. Charged me more for the life insurance. Follow up with my GP...said don't drink alcohol, don't take Tylenol, don't eat sushi. NOTHING was done for me, nothing is being done for me. On my own, I gave up gluten for 8 or 9 years. Just recently started consuming a bit of gluten again.
, that's so frustrating! You would think things have changed in that amount of time, but I doubt you, or I would be surprised at how many are diagnosed and only find out by reading a report and have zero conversations afterward with their care team unless they initiate it! Infuriating! There is still not enough information and education available to newly diagnosed patients. We hope our community is part of this new transition and movement. ~Liz, Moderator
