What was your experience being diagnosed with NASH?
For many living with NASH disease, the road to a diagnosis can be long, frustrating, and full of questions.
How did you feel after getting diagnosed with NASH? Did you know what NASH was prior to being diagnosed? We'd love to hear more about your experience!
Sharp/ dull Right side Pain A Lot
Sluggishness
Tired all the Time
Nauseated
Sometimes pukingHeadache
Sometimes No appetiteHow awful - so sorry you had to experience those symptoms! How are you doing now? -Alexa (team member)
2023
I'm new here. I tried telling my story during the sign up, but had some tech issues. After 2 years of testing I was diagnosed in 2008 with NASH, Fibro, Type 2 diabetes, and arthritis. Within the last year I've been suffering with difficulty swallowing and burning sensation in my esophagus and stomach. After 3 Outpatient tests (and $2,500 later) I still have no answers. My pain levels have skyrocketed in the last few weeks. I currently take Percocet for my pain. It helps take the edge off and is only one of MANY different meds over the years. I was surprised to see a NASH support group existed. I hope to make some connections and share my knowledge from so many years of suffering.
welcome to the community, we’re happy you’re here. Our community is here to support you and we look forward to hearing more from you. I hope you’re able to find some relief from the symptoms you’re experiencing in your stomach and esophagus. All my best, Julie (team member)
Thanks so much for this. Never had anyone say anything about pain killers not being good for my liver. In hospital at present as I have ballooned with fluid retention, so when I see the consultant tomorrow I will ask him about the meds.
medications like Tylenol are processed through the liver, and it is often suggested to use with caution in patients with liver damage. It is a good idea to discuss your medications with your doctor, to make sure they’re the right fit for you. I hope they’re able to get your fluid retention under control and you’re discharged soon. Sending well wishes, Julie (team member)
