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What was your experience being diagnosed with NASH?

For many living with NASH disease, the road to a diagnosis can be long, frustrating, and full of questions.
How did you feel after getting diagnosed with NASH? Did you know what NASH was prior to being diagnosed? We'd love to hear more about your experience!

  1. I just found out that I have stage 3 Nash and I don't see the liver doctor till September. I'm super tired all the time, have dizzy spells, shap pain on upper right side which comes and goes, nausea and very itchy skin. No one has told me what I'm suppose to do for this and I'm very stressed out

    1. managing a new diagnosis can be overwhelming, even more so when you aren’t able to get in with a specialist for months. Our community understands, and you’re not alone. While you wait for your appointment, here are some general lifestyle guidelines to assist in managing NASH and its related symptoms https://nashdisease.net/lifestyle-changes https://nashdisease.net/living/nash-and-itching. Please do not hesitate to reach out with any further questions and let us know how you’re doing. We’re here to help and support you💚. Thinking of you, Julie (team member)

  2. Upsetting

    1. Hi there, I was diagnosed 3 months ago while. hospitalized with another health issue. After the ultrasound exam the doctor came to go over the results. While leaving, he turned on his heel and said "Oh, by the way, you have fatty liver disease. He dro
      pped this " bomb" and left. I'm floundering on my own. Glad to find you!

  3. My PCP worked with a research group&asked if I would let them to do blood work on me as part of their research. As part of the testing they discovered my condition. This was about 3 years ago. I had no indication of the condition before or after.

    1. I can only imagine what a surprise that must have come as. How have you been doing lately? -Julie (team member)

    2. Talk about divine intervention! How has your journey been since then?

      Warmly,

      Samantha (team member)

  4. Fatigue and itching

    1. have you found anything to be helpful in managing either symptom? -Julie (team member)

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