What was your experience being diagnosed with NASH?
For many living with NASH disease, the road to a diagnosis can be long, frustrating, and full of questions.
How did you feel after getting diagnosed with NASH? Did you know what NASH was prior to being diagnosed? We'd love to hear more about your experience!
I’ve had fatty liver disease for over ten years and was given no info on how to improve the condition nor warning that it could become Nash. Now I am on Rezdiffra. The pharmacy that sends it too me told me to eat a Mediterranean diet when I asked. Still nothing from doctors. I now am on Zepbound and am working with a dietitian. All my own doing. Thank God for the internet as my doctors are worthless s dept to prescribe meds.
Scared, didn't know what it was or what to expect.
My mother was diagnosis
Back in the early 1990's I was giving blood to the Red Cross. After one donation, I received this "kind" letter from them that if I ever donate blood again, they were going to prosecute me. They said my blood failed the hepatitis test. So, I went to my doctor and gave him the letter, and he ordered a blood test. It came back that I had no Hepatitis enzymes in my body - not A, B or C; but my liver enzymes were quite high. He said that we would watch this. Over the years we watched it, and I developed diabetes. I was not given a specific diet, just knew I had to get my weight down - I was not particularly obese, and I exercised very hard. I played basketball, bikes 20-30 miles a day. I biked centuries once a year. One doctor gave me ultrasounds and one time a liver biopsy - all came back normal. Until October 12, 2020. I woke up feeling funny and could not stand up without collapsing. Went to the ER, ended up in the hospital with an esophageal bleed. My liver was full of cirrhosis, and I had two spots of HCC cancer. Now my only hope was a liver transplant. On September 5, I received a transplant at the University of Michigan. I wish I had known much earlier about NASH and how serious it was. I am going on my fifth year, and no cancer. I am so thankful for the Doctors who treated me at St. Mary's hospital in Grand Rapids, MI; and then the doctors at the University of Michigan Liver Transplant.
