Welcome! Please Introduce Yourself.
Welcome to our community! We’d love to learn a little about what has brought you here.
What brought me here is the inaccuracies in your article and basically all your information regarding "NASH". I'm not sure how up to date you are but I would encourage your readers to examine the link to the updated article giving accurate and timely information:
https://cmsa.org/the-rebranding-of-nafld-and-nash-as-masld-and-mash/
There is no such medical condition as NASH or NAFLD any longer. The names and information have been rebranded and updated to reflect more recent studies and the experiences of gastroenterologist and hepatologists. I hope in the future, in the interest of providing expert and accurate education for your readers, you make certain your articles are being written by those who are knowledgeable and up to date with their information.
Steve Cripe RN (ret.)welcome to our community, and thank you for sharing so openly! The Health Union community encourages open discussion and we want you to be confident in the information you find on our site. A majority of our articles are written by patient advocates that have the condition, and share their own personal experiences. Everyone’s experience is unique! The informational articles written by the editorial team are periodically reviewed and updated by our medical review board. You can always find a list of references at the bottom of the articles to verify the information as well. Research into these conditions is constantly evolving, and we appreciate you bringing up some of the most recent changes! I will pass your feedback along. Thank you again and I look forward to seeing you around the community. All my best, Julie (team member)
Well Julie, it's all well and good to say that a majority of your articles are written by patient advocates who have the condition. But if they're not discussing their medical condition in terms of what is happening today regarding research, treatment, and currently accepted stages of the disease process, then they need to be educated and brought up to date by your medical review board and experts. "Everyone's experience is different" is true of any medical condition. But I'm not talking about people's experience. When patients are looking for information on a disease, they want the latest information. The articles on your website I've read do not reflect that, especially if you're not referring to the medical conditions accurately. And if your references that go with each article are not addressing sources that re-direct people to the latest, then are you really educating? Changing the name of your organization would be a good start and would say to patients, families and caregivers, "this resource has credibility". I'm not sure how long your organization has been around, but appearance wise, you need to bring everything and everyone into today. Either that or, since things are constantly changing, from research results to treatments to patient's experiences, you could take a more "general approach" and have your organization take a general "medical conditions of the liver" approach. If you want to be an authority on these conditions that effect the liver, I believe you need to educate and discuss the conditions in terms of what is happening today and where things are going in the future. In looking at the name of your organization, it would not be one I would consult to get the latest, accurate information. But this is just my experience with not only this disease process and condition, but medicine in general over the last 30 years.
Thank you for your time,
Steve Cripe RN (ret.)
Vivian from Nashville TN. Diagnosed with Fatty Liver disease in June of last year thanks to a vigilant nurse practitioner who saw concerning elevated numbers in routine blood work and sent me to a hepatologist. I've been so careful ever since to follow his recommendations. Catching it early is crucial since there were NO symptoms. I've lost weight, changed my diet, given up alcohol, given up sugar, salt, and white rice and potatoes. It's a struggle every day, but a friend had to have a liver transplant last year, and I saw how awful that was. I definitely don't want to go through that.
Hi, my name is Doreen. I'm 70 years old next month. I was diagnosed with NASH (now MASH) 20 years ago. I was diagnosed with cirrhosis last fall. I have no symptoms so I have compensated cirrhosis. They tell me if I lose weight it will help keep the fat out of the liver so I don't progress to decompensated cirrhosis. It's a tough thing to deal with so I can use all the support/ideas that I can find! Looking forward to sharing and learning with everyone!
Hi. 73 male. I was diagnosed 6 years ago. I lost 20 lbs and my test came back ok. I haven't had any test in a couple of years but I'm due. I have no recognizable symptoms.
Welcome to the community! I'm glad to hear you're not experiencing any symptoms. Keep me posted on how you're doing - I'm keeping my fingers crossed for another round of solid test results! -Alexa (team member)
