Welcome! Please Introduce Yourself.
Welcome to our community! We’d love to learn a little about what has brought you here.
Hello, I am Dawn and my husband has NASH. We recently discovered that he has 3 spots on his liver which is cancer. They are recommending him for a liver transplant. We just had two days of testing and meeting with many different doctors, for his evaluation. He is supposed to get the liver tumors shrunk somehow. I don't know exactly the terminology. This will happen before transplant. Supposed to be on the waitlist in about a month. I am anxious about the symptoms. He feels fine and is working in construction. Will he eventually have more symptoms as time goes on? I am trying to learn as much as I can about this disease. I feel we are in good hands. We live in a suburb outside of Boston Ma. and hospital is only 15 minutes away. I joined a free support group on zoom run by the American Liver Foundation, every third Thursday if any needs more support I can provide more information. Thank you for this forum. I hope to visit often.❤️
Hi Dawn - we're so glad you found our community! I'm very sorry to hear about your husband's diagnosis. I can imagine how scary it must be for him and your family as you try to navigate new symptoms and prepare for a liver transplant. I hope our community can be a safe place for you to learn and seek support. ❤️
I wanted to share some articles that may be helpful for you, if you haven't seen them already:
- https://nashdisease.net/answers/what-to-expect-when-waiting-for-a-liver-transplant
- https://nashdisease.net/living/8-symptoms-caused-by-nash
- https://nashdisease.net/symptoms
- https://nashdisease.net/stages
- https://nashdisease.net/treatment
If there's anything specific you'd like more info about, please let me know! As a newer community, we're always looking for feedback on what topics would be helpful for those living with NASH and caregivers. Wishing you all the best, Alexa (team member)@
Hello, my Dr told me I have nash..but only thing he said was kinda chuckle and say lose weight....I do have a cyst in my liver ,but nothing is ever followed up..what should I do?
Ugh, I'm so sorry to hear how your doctor dismissed you. Unfortunately, I'm sure there's many people in our community that have experienced that stigma. May I ask if you've considered seeing a new doctor? I know it can be frustrating to try and find someone new, but you deserve quality care! I unfortunately can't offer medical advice, but I did want to share some articles we have that may be helpful as you navigate your NASH diagnosis. One of the links below covers the types of doctors/specialists that treat NASH. Perhaps that could be a good place to start to see if you can locate a specialist in your area that can help with NASH and the cyst on your liver?
- https://nashdisease.net/treatment
- https://nashdisease.net/lifestyle-changes
- https://nashdisease.net/diet
- https://nashdisease.net/doctors
- https://nashdisease.net/resourcesPlease keep me posted on how you're doing! If you're looking for resources/info on anything specific, let me know and I can try to point you in the right direction. Best, Alexa (team member)
Has anyone had really bad right side pain and shoulder blade pain. How about fainting
right sided pain is a common symptom in NASH due to the location of the liver. I’ve included an article with some additional signs and symptoms https://nashdisease.net/symptoms. If you haven’t already, I would encourage you to discuss your symptoms with your doctor so they can help determine the root cause. Please let us know if there is anything we can assist with. Our community is here to support you. All my best, Julie (team member)
Hi I've been dealing w illness 20+ first auto-immune very rare hard to get diagnosed I did have so many different treatments I believe they effect my li- I have stem cell transplant in 2015 help some many pain medication chemotherapy- now cirrhosis of the liver stage 4 and having many complications- really difficult and I feelany doctors don't understand how much liver issue are hurting us
Hi
- welcome to our community! We're so glad you found us. Thank you for sharing a bit about your story - it sounds like you've been through quite a difficult journey managing multiple diagnoses and complications. I'm so sorry to hear that you don't feel understood by your doctors, I know this is something that, unfortunately, many of us can relate to. I hope our community can be a support system for you as you navigate life with cirrhosis! Not sure if you saw our recent article about cirrhosis of the liver, but here's the link in case you'd like to read it: https://nashdisease.net/clinical/understanding-liver-cirrhosis. If there's anything I can do to support you, please let me know. 💙 All the best, Alexa (team member)
