Living with nonalcoholic steatohepatitis (NASH) or other chronic liver disease can be overwhelming. The physical symptoms, emotional stress, and required lifestyle changes can greatly impact daily life.
Fortunately, many resources are available to help people with NASH and their loved ones navigate these challenges. Here is a breakdown of some valuable resources.
American Liver Foundation
The American Liver Foundation (ALF) is a leading organization dedicated to the prevention, treatment, and cure of liver diseases. They offer a range of resources for those affected by NASH and other liver conditions.1
Support groups
ALF hosts in-person and virtual support groups where people with liver disease and caregivers can share experiences, get advice, and find emotional support. These groups are often led by healthcare professionals and provide a safe space for discussion.1
Educational resources
The ALF website is a treasure trove of information on liver diseases. They offer:1
- Articles and fact sheets about the liver
- Clinical trial information
- Help finding a liver transplant center
- Videos on topics like diet, exercise, and treatment options
Liver Foundation helpline
This helpline provides personalized support and information. Whether you need help finding a specialist or understanding your diagnosis, trained professionals are available to help. You can reach the ALF helpline at 1-800-465-4837.1
Global Liver Institute
The Global Liver Institute (GLI) is a nonprofit focused on improving the lives of people with liver diseases. GLI offers educational materials and resources to help people understand their condition and manage their health.2
Advocacy and awareness
GLI works to raise awareness about liver diseases through campaigns and advocacy efforts. They aim to improve public understanding and guide policy changes to benefit people with all kinds of liver diseases.2
GLI LIVE
GLI LIVE began in March 2020 as a response program to support people with liver disease during the COVID-19 pandemic. It has since grown into a weekly educational show. It provides information on a wide range of relevant topics for those living with liver diseases. Watch it here.2
Liver Central
Liver Central is all about education, advocacy, and collaboration. They aim to drive change in medical settings, communities, and beyond. Liver Central is a great hub for answers, whether you:2
- Have recently been diagnosed with liver cancer
- Are seeking information on new treatment options or clinical trials
- Are a clinician looking for current practice guidelines
GLI Appetite™
This nutrition app makes customized meal plans based on guidelines provided by GLI nutritional advisors. It caters to people with NASH and those with a general interest in liver health.2
NASH Knowledge
NASH Knowledge is a nonprofit dedicated to increasing public awareness about NAFLD and NASH. Their offerings include:3
- Helpful information about fatty liver disease
- Infographics on the prevalence of liver disease
- Nutrition tips
- “Love Your Liver” podcast
- Ways to get involved in spreading awareness
Liver disease support group
NASH Knowledge also hosts a virtual, bimonthly support group meeting. It is open to all people affected by liver disease – patients, caregivers, family, and friends. Anyone interested in learning more about liver disease can join. Check out their calendar.4
European Association for the Study of the Liver
For those in Europe, the European Association for the Study of the Liver (EASL) provides the following support and resources.5
Patient registry
EASL maintains a registry of patients with liver diseases. This registry helps track disease trends and improve treatment strategies.5
Educational programs
EASL offers a range of educational programs for both healthcare professionals and people living with liver disease. The programs include webinars and conferences that cover the latest research and treatment options for liver diseases.5
Liver Patients International
Liver Patients International (LPI) focuses on patient advocacy and support. LPI envisions a world where all people with liver disease have access to timely diagnosis, appropriate healthcare, and the best possible quality of life.6
LPI works to ensure that people’s voices are heard in research and policy discussions through:6
- Policy and advocacy work
- Information and awareness campaigns
- Patient empowerment initiatives
- Support for national patient organizations
British Liver Trust
The British Liver Trust offers a ton of resources and information on liver health. These include guides on diet, lifestyle, and managing specific liver conditions. They also have more interactive support options such as the following.7-9
Love Your Liver Screener
Early diagnosis can make a world of difference in managing and treating liver disease. By completing this short and simple questionnaire, you can find out your risk level. Take the screener.7
LiverLine helpline
This confidential helpline offers support and information on all aspects of liver health. Trained advisors can provide guidance on managing liver diseases, finding local support, and understanding treatment options. Call 0800-652-7330 between 9 AM and 3 PM, Monday through Friday.8
Support groups
British Liver Trust organizes local support groups where folks can connect with others facing similar challenges. These groups provide emotional support and practical advice.9
You are not alone
Living with NASH or any chronic liver disease can be daunting, but you do not have to face it alone. By reaching out to these groups, you can find the information and support you need to manage your health and improve your quality of life.